Skip to main content

quote:
Originally posted by NumberThree:
I have been touched by a friend and loved one who died of bone cancer and another from Thyroid Cancer. The purpose of the post is to show that, as others have already mentioned, breast cancer is treated differently than of other types of cancer and seems to be more about funding the events and awareness than actually funding a cure. From very personal experience, it can make those with something other than breast cancer feel forgotten.


OK Hate to keep pissing on my own pity party: Mrs GusBob also suffered from Thyroid cancer. While she was pregnant with our son. That means no radiation,no chemo until the boy was born. Then a series of long complicated surgeries. Thank God for the University of Wisconsin and its clinical research dept. She almost died the first time she had cancer. Breast cancer will kill her eventually. I thank y'all for keeping this thread kicked. Cant wait til next October, really.

Since that time she has watched her dad die of lung cancer, her mom die of breast cancer, my brother die of brain cancer,,,and helped all the moms and daughters that I have talked about upthread with their breast cancers, plural. She is also a physician and has diagnosed primary and secondary cancers in dozens of patients. Counselled them. Cared for them. Do you think we get to pick and choose which cancer victims from our personal experience we should remember, or which ones we forget.F that
This is a bull**** thread. Cant wait for November. maybe this will be football forum
quote:
Originally posted by FinnLander:
quote:
Originally posted by Deadhead Archer:
That's right, the Rams sent Breast Cancer a big FU
Not exactly.

The article was a piece for October 2nd. It's supposed to be awareness month.

I did think it interesting that Packers were wearing pink and not a spec on the field for the home team. Of course I also thought it interesting that 50% of the crowd was in green and gold too. Rams fans are classier then many others and the Eddy Jones Stadium is a great place to go to a game.
Last word: when my wife was diagnosed with breast cancer last Fall, I posted about it here in a thread at the end of the season that went for extra pages, how it affected our plans for a trip to Lambeau for the playoffs, and her life as a Packer fan, our hopes and dreams for the future. Not one person in this forum acknowledged it in anyway. Nothing, Zero, Nada from our fellow Packer Fans.
Cancer can do that, make you a pariah. A victim in more ways than one
You can hate on pink and you can hate on Komen. And you can ignore the real person sitting right next to you on your team, hurting.

Good-Bye X4. Go Pack
MN Backthepack - HUGE HUGE Thanks for all you do on behalf of your patients & their families and good luck with your research

I think some of Boris' comments stem from a conversation we had a few years back talking about the Pharma industry in general. I spoke to him about the fact that we really still are in the stone ages in terms of fully understanding human biology. We also talked about how the Pharma industry tended to treat symptoms ( coughing, sneezing, runny nose fever and aching medicine..) rather than the source of the disease itself. And finally we talked about the push to develop lifestyle drugs like Viagra instead of a cure for malaria. "Go where the money is "

But we didn't talk about treating cancer specifically and curing that group of diseases is an incredibly complex and challenging task as you've noted. It isn't a chemical imbalance, it isn't an infectious disease, - its you. Its your very own cells that are no longer responding to the feedback loop telling them to stop dividing. That's what makes cancer so incredibly difficult to treat - because separating the tumor from the human is in many ways - still just beyond our grasp.

There's tremendous work being done looking at cancer stem cells, to see if thwarting them will help eliminate tumors long-term. Biotech companies are developing genetic testing to determine the exact type of cancer you have and hopefully allowing clinicians the ability to develop more personalized protocols for treatment. That's a huge leap forward from the one-size- fits-all treatments of the past. We're evolving past the general anti-proliferatives to more targeted therapies

As for the pink and Susan Komen, some people feel it would be a better use of our limited funds to spend it not on pink fabric and salaries, but instead plow those funds directly into something more useful. I tend to agree. But it doesn't mean I'm not compassionate or aware - I've unfortunately lost family members to breast cancer too.
It ****ing sucks. (Taxol / Taxotere weren't available at that time)

The NFL does it to look good and to feel good and for the demographic - if they really gave a rats arse they'd do a lot more than donating "the net proceeds" of a one-month marketing program. Still its way better than doing nothing.

Cancer Awareness is certainly important, direct contributions might be better and I'm guessing your Cancer Center would have no shortage of worthy uses for the fabric funds. That's just one man's opinion and again thanks so much for the great work you do and good luck with your research.
.
.
.
.
...And here's how I was shown how wrong I was: My daughter's soccer team opted to purchase and wear pink warmups, socks, ribbons and wristbands to support the cause. When I suggested we instead spend the money directly on research, the families all voted to do both - buy the pink AND make contributions to the national breast cancer foundation.
So I learned something along the way.

Buying/Wearing the pink seems kinda frivolous, but it certainly makes a difference and for that reason alone, I'll gladly STFU about it and wish them all the best
quote:
Originally posted by GusBob:

Good-Bye X4. Go Pack


I think we'd all prefer it if you stuck around and continued to share with X4 Gus Bob, your comments on coaching and on concussion research are some of the ones I've learned a lot from over the years

People have different views- and clearly this hits home for you, sorry that X4 wasn't more compassionate during your difficult times. Good luck with whatever you choose and enjoy the season
I will agree that all is not bubble gum and lollipops in cancer research land. The system has fundamental flaws and too often the tail that is pharma is wagging the dog of trying to find breakthroughs in cancer treatment. Too much energy and resources is spent on things that are clearly not going to be a major step in search of the almight P value that will grant FDA approval for treatments that are of questionable real value. There is too much fear of failure to encourage researchers to take risks that might lead to a game changing discovery.

But there are lots of people in pharma who I think have their hearts in the right place. And as in all things, money is a powerful motivator to innovate. If that's what it takes to get the next Gleevec or Herceptin, maybe that's OK.
GusBob, the lack of acknowledgment regarding your personal situation is unfortunate. Other people on this thread have testified to their personal battles with devastating forms of cancer as well, and I don't see a huge outpouring of sympathy for them, either.

FWIW, having been with X4 for almost 8 years, I have noticed that many times it's not what is said as much as who is saying it (writing it, actually). Less popular or less known posters are often dismissed or ignored.

I am sorry to hear of the pain you and your wife are going through, as well as that of the other posters who have opened up about their own situations. Best wishes to each of you.

I hope you reconsider and stay.
The way I see it, the whole "wear pink" thing can be pretty polarizing probably not so much because it's "shoved down our throats" (though it seems an obvious way to feel) but probably as much (or more) in many cases because of the allocation of funds. The Susan G. Komen Foundation is starting to face some of the same scrutiny as such other monolithic charities as United Way: Their administrative costs keep rising to the point where less and less of the money donated actually goes towards what the donors intended it for. People head up the drives at offices as a networking tool and a way to increase their status to try to further their career rather than an actual drive for the charity itself. I think this can taint the cause in many peoples' eyes.

And while the pink stuff is designed to stick out so it appears "everywhere" I suppose it comes down to one's feeling on "advertisement". I'd argue that raising as much awareness as possible is a good thing, even though Komen would not be my preferred method/vehicle for raising it. I'm okay with it though in my giving I generally tend to give directly to the charities rather than through an administrator.
quote:
Originally posted by Satori:
MN Backthepack - HUGE HUGE Thanks for all you do on behalf of your patients & their families and good luck with your research

I think some of Boris' comments stem from a conversation we had a few years back talking about the Pharma industry in general.


Correct.

MN Backthepack, If you've continued reading through the thread you know I used to work at a Big Pharma company.

quote:
Originally posted by MN Backthepack:
But there are lots of people in pharma who I think have their hearts in the right place.


Completely agree & I wasn't lumping everyone into the "greed" comment even if you took it that way

quote:
Originally posted by MN Backthepack:
And as in all things, money is a powerful motivator to innovate. If that's what it takes to get the next Gleevec or Herceptin, maybe that's OK.


Hmmm, Herceptin. Interesting. Seems I'm familiar with that drug.

As long as the money is used to innovate & get that magical break-through, I'm all for it.

FYI, I donate a lot of money to cancer research.
GusBob, please stay. I don't think anybody here lacks sympathy for what you've been through. I lost my Godmother to breast cancer, and it hit my family hard. But count me as another one that is tired of seeing the pink on the football uniforms, and hats, etc. I like the idea of putting a big pink ribbon on the field, and taking the money that is being spent on all the merchandise being produced and giving it to the companies doing research.

I am not against increasing awareness. I am for finding a cure, and saving the women that are sick and dying.

Add Reply

×
×
×
×
Link copied to your clipboard.
×